My Story ?>

My Story

So, I am about to do one of the scariest things I think I have ever done in my life!

Over the last 8 years I have done everything in my power to hide my alopecia. When I was first diagnosed I wouldn’t leave the house without my extensions in, just to try and stop people from seeing my bald patches. I was always scared of what people would think, or what they would say. I was scared of people laughing or pointing at me and I was worried that they would judge me.

I was known for a while as ‘Flower Power!’ No one knew, but the reason I wore a flower every day was actually to cover the round patch of missing hair from the top of my head, not because I was trying to make a fashion statement.

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Only now, after going through some extremely stressful and emotional times recently. And with the support, encouragement and love of my family and friends, do I feel that I am ready to show the world the REAL me.

The first signs of Alopecia started back in 2010. My hair would come out in thick clumps in the shower, when I brushed it, and I would even wake up in the morning with hundreds of strands all over my pillow. I made a doctors appointment and after multiple tests and being told to ‘keep an eye’ I was asked to go back for further testing at a later date.

It wasn’t until a few months later that I was officially diagnosed with Alopecia Areata.

Around the same time that I noticed my hair falling out, my Mum had a traumatic accident which almost lead to the amputation of her leg! This was an extremely stressful time for my whole family.

Stress is one of the main causes of Alopecia and the slightest amount can trigger it off at any given time. With the amount of stress that I was under with my Mum’s accident, as well as trying to complete a college course and looking after my younger sisters, my Alopecia seemed to spiral out of control.

I was prescribed an ointment which unfortunately did nothing other than make my hair greasy every day! After seeing doctor after doctor and being told to continue using the ointment; I watched the months pass, until finally I was advised to see a specialist.

When I eventually got to see a specialist he told me that my condition had deteriorated too much for me to have steroid injections, which is what they usually offer patients if the ointment or other treatments don’t work. It was at that point that my Mum suggested I took some photos so that I could look back and compare the severity at a later date.

If she hadn’t have suggest that I wouldn’t be able to share these before and after photos with you today…

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I’ve been told that 98% of sufferers have regrowth in the first 3 years, and 2% don’t. Unfortunately, I am part of that 2%. There is no cure for alopecia that has been discovered yet, and I have been told that it is only a matter of time before I suffer with total hair loss. I am trying to be positive in the hopes that one day, it just might come back, however I have to prepare myself for the worst.

Fortunately there are many companies out there that offer fantastic wigs and services for patients. Transplants are also available but they can be extremely pricey. As time goes on and more of my hair comes out I will eventually start to look into these services.

For now though I am trying to embrace my patches, and with the help of my family and friends I am becoming more confident by the day and learning to accept it. Without them I would be nowhere, so I would just like to take the opportunity to thank each and every one of you!

For those of you that are suffering with Alopecia; I know that it is not easy, but one of the greatest hurdles you have to cross is the one where you realise that you don’t need to hide who you truly are. Believe me, once you cross it the greatest weight comes off your shoulders and you become a stronger person. It has taken me 6 years to get to the stage that I am at now, but now I am here I feel so much more lifted and full of self confidence.

Always remember, you are the same person with or without your hair and that only shallow people value others on their appearance.

There are so many people around us all that have similar insecurities to those that we have, all it takes is for us all to unite, help and inspire each other and together, we will be stronger.

Jade x

16 thoughts on “My Story

  1. So so proud of you jade & you should be proud of yourself too. Such an inspiration, especially to people who are suffering the same thing ❤️ Xx

  2. Darling Jade I have not had the opportunity of meeting you yet, but I feel I already know you. I am Alex’s mum and 2nd mum to Mathew I know god help me. You have done the most inspirational and bravest things by letting friends and strangers into your personal life and letting them share your fear of this dreadful illness. You are beautiful with or without your hair extensions because it is the person who shines through and you have the personality which outrides this and no one can take that away from you. Keep strong and positive you have jumped through the first public hurdle. Please say Hi to Mat and I hope to meet you soon xxx

    1. Hi Jacquie. Thank you for your lovely message and your support. Your kind words mean so much and I am determined to help others in the same position as I am. Please feel free to like my Facebook page and continue to follow my story. Jade x

  3. I am proud of you Jade! I have suffered with the same disorder for about 25 years and I’ve never gone out in public with out my wig or a hat/scarf on so I understand the struggle. I admire your courage and I can’t wait for the day I can step out and be myself. I dream of how liberating it must feel. I’ve always had an excuse to not do it. My current reason is to avoid embarrassing my 6 year old daughter. Even my husband of 8 years hasn’t ever seen my head uncovered. Thank you for sharing your story. You are an inspiration to many!

    1. Hi Ramona! Thank you for your kind words. I completely empathise with you, it’s so hard to take the first step and it’s such a difficult disease to live with. I hope that this blog will help others to feel more confident in themselves, and I hope that you enjoy following my story. Jade x

  4. beautifully said ❤️ thank you for sharing your journey! i am currently dealing from alopecia as well and i don’t let that define who i am, and neither should you!

    1. Hi Christy. I love that you feel that way too. It is so inspiring to hear your positivity. Keep it up 🙂 Please continue to follow my journey and my Facebook/Instragam. Much love, J x

  5. Hi Jade! Well done on your blog, beautifully professionally done and wonderfully honest. I hope you feel proud, because you really should. I am really pleased you are able to share this with us. Tash. x

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  7. Hi Jade! I just read your story and it’s like I know you all my life. I’ve been diagnosed with alopecia incognita and this autoimmune disease can be really scary. For now, I am really grateful for for getting to know your blog and you are really an inspiration for people suffering from the disease and everyone really 🙂 Thank you so much for sharing your story! ….ah and one more thing, you are simply gorgeous!!! with or without hair 😉 <3 Carla x

  8. Hi Jade,
    My hair started to fall out and get thinner after being in the hospital and taking a lot of drugs. I got so tired of wearing wigs, especially in the summer. The wigs were hot, and everywhere I pinned the wig to stay on, my already baby fine hair got thinner to where there was no longer any hair. That’s when I found Nicole, and she explained hair replacement and how it could change my life. It has really been a blessing to me to be able to look normal. Also, my friend and former classmate Jim Toscano does the same thing in his shop in PA. I now live in SC, the same place I met Nicole. But one day, bald women will be sexy, and we will be ahead of rest, Bald and Beautiful!
    God Bless you!

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